Our History
Through the Eyes of Our Founder
How We Started
In 2024, I began working with children and families affected by sickle cell disease at the Pediatric Comprehensive Sickle Cell Program at University of Michigan Health C.S. Mott Children’s Hospital. What began as a research role slowly became something more meaningful to me.
What I Experienced
Working alongside patients, families, and care teams changed how I understand sickle cell disease.
I saw how complex the disease is, and how much care, coordination, and effort goes into supporting each patient every day.
What stood out most was the strength of the patients and families navigating it all together.
What I Realized
Over time, it became clear that sickle cell disease is deeply underfunded and underrepresented.
Because it disproportionately impacts underrepresented communities, there are ongoing gaps in awareness, resources, and support that continue to affect care and outcomes.
Why I Started This Organization
My empathy for the families and care teams I worked with is what ultimately motivated me to start Strides for Sickle Cell.
I wanted to take what I was seeing and help turn it into greater awareness, support, and progress for this community.
stridesforsicklecell@gmail.com
Connect With Us
Strides for
Sickle Cell
